The development of PROMs
With the project RICORDO-PROEM: Rehabilitation Intervention of COgnitive Resources Domain-Oriented with Patient-Reported Outcome and Experience Measures, functions within the RICORDO-DTx rehabilitation platform will be developed, in order to enhance the personalization of therapy through a wider patient’s involvement in his care path.
Standardized and validated self-assessment questionnaires (“Patient-Reported Outcome Measures” – PROM) will be developed such as, for example, measures assessing the perceived level of disability or quality of life in relation to one’s own health status, which will be identified after specific analysis by Don Carlo Gnocchi Foundation.
As recommended by the guidelines for the implementation of the digital home care (Ministry of Health, 2022), digitized PROMs will be administered via apps on tablets both pre- and post-intervention and in its peri-operative phases, integrating data obtained from clinical and instrumental measures and those collected during home monitoring via the telerehabilitation.
The aim of the project is to ensure that data obtained from digital PROMs before the start of rehabilitation contribute to a profiling of the patient in accordance with his or her specific clinical-welfare needs, so that therapy can be more precisely tailored.
The data obtained from digital questionnaires completed in itinere and at the end of therapy will be used to help in the evaluation of treatment effectiveness and to refine the logic of personalization.
The digitization of PROMs will involve clinicians and patients of the Don Carlo Gnocchi Onlus Foundation according to a model of co-design. Upon completion of the developments, these new features will be the subject of of a Pilot Study that will involve patients at-risk or with mild dementia treated by the “Sant’Angelo dei Lombardi” clinical center in Avellino.
The project is co-founded through the Call for PNRR cascade within the Project “THE – Tuscany Health Ecosystem” – Spoke 10, supervised by Scuola Superiore Sant’Anna of Pisa.
The project has started in July 2024 and has an expected duration of 15 months.
